Sickle cell disease is a genetic disease that affects red blood cells, which are responsible for transporting oxygen in the blood. The non-governmental organization Mapendo Lushi celebrated this Monday, June 19, the international day of sickle cell disease in the Arrupé room, with the aim of raising awareness among the population about this disease.
During the conference-debate, Benatar Chilufya Mathilda, the founder of the NGO, invited two specialists to explain the risks and dangers of this disease. She shared her experiences as a mother of two children with sickle cell disease. “I had to look after two children with sickle cell disease, one at 43 and the other at 31. I assure you that this is a very difficult reality to overcome. Do premarital exams before you get married,” she said.
Dr. Patience also captured attention by pointing out that sickle cell disease is not a disease to be taken lightly. “Think again, it has nothing to do with spirituality,” he explained.
The NGO Mapendo Lushi also offered a batch of products to sickle cell sufferers to relieve their pain. “Know that it is possible to live with the disease and we can even eradicate it by having a sanitary discipline. However, our country must also help us find long-term solutions,” concluded Benatar Chilufya Mathilda.
This conference brought together several Lushois and raised awareness against the stigmatization of people with sickle cell disease