Fatshimetrie, November 4, 2024 – A wind of hope is blowing on associations of people living with albinism in sub-Saharan Africa. The “Pierre Fabre” foundation recently announced its commitment to support these associations in five different countries, including the Democratic Republic of Congo. This initiative aims to improve the well-being and quality of life of people with albinism in the region.
During a meeting held in Abidjan, Ivory Coast, the foundation brought together representatives of associations from Niger, Uganda, Madagascar, the DRC and Ivory Coast to discuss the “Apas” project. This project aims to strengthen the protection and prevention of access to care for people with albinism in sub-Saharan Africa.
Nathan Bafalula, Secretary General of the Organization for the Well-being of People with Albinism in the DRC (OBEAC), highlighted the importance of this support from the Pierre Fabre Foundation. He explained that the associations have received support to strengthen their capacities and develop advocacy strategies to make the concerns of people with albinism heard by government authorities and partners.
This collaboration between the Pierre Fabre Foundation and the associations of people with albinism is long-term, with the upcoming signing of a contract for a three-year project. The joint efforts aim to address the multidisciplinary problems faced by these vulnerable populations.
The participation of the DRC in this initiative, represented by associations such as OBEAC in Kisangani and the Julio Foundation in Kinshasa, demonstrates the country’s commitment to improving the situation of people with albinism. By joining forces and benefiting from the support of the Pierre Fabre Foundation, these associations hope to pave the way for a better future for people living with albinism in sub-Saharan Africa.
This new collaboration promises better care for people with albinism, increased awareness of this genetic condition and a more effective fight against the discrimination and prejudices that these populations often face. It embodies hope for a more inclusive and united future for all.