Fatshimetrie: Advocacy for better care for people with albinism
On June 13, the world celebrated International Albinism Awareness Day. An opportunity to recall the importance of supporting people affected by this rare genetic condition. People with albinism are highly vulnerable to skin cancer due to their melanin deficiency, putting them at increased risk of premature death, according to alarming data from the United Nations Children’s Fund (UNICEF). . In some countries, the majority of people with albinism die from skin cancer between the ages of 30 and 40, a shocking reality that highlights serious gaps in support and protection for this population.
In the Democratic Republic of Congo (DRC), the issue of access of children with albinism to sun protection, suitable clothing and specialized medical care remains a concern. Despite advances in the field of health, many children with albinism do not benefit from the preventive measures necessary to protect themselves against the harmful effects of the sun on their particularly sensitive skin. Their vulnerability is exacerbated by the absence of specific public policy aimed at guaranteeing their long-term well-being and health.
It is essential to raise awareness among the authorities and society as a whole about the importance of appropriate care for people with albinism. This involves implementing inclusive health programs, offering easier access to dermatological care, sun protection and clothing specially designed to prevent the risk of skin cancer. The objective is to ensure a better quality of life for these individuals who fight on a daily basis against prejudices and obstacles linked to their condition.
On this awareness day, let us highlight the need for increased solidarity with people with albinism, working together for a more inclusive and caring society. It is time to act to guarantee everyone the fundamental right to health and well-being, regardless of their skin color or genetic characteristics. Together, let’s build a world where everyone finds their place, protected and respected, without distinction or discrimination.