Today, the whole world celebrates World Sickle Cell Day or Anemia SS. This genetic disease particularly affects regions of sub-Saharan Africa, where it is considered one of the main causes of infant mortality. The theme chosen for the 2023 edition is “Early detection equals better choice”.
To support this fight against sickle cell disease, the foundation of the First Lady of the Democratic Republic of Congo (DRC) has undertaken awareness-raising and support actions for structures caring for patients. In particular, it carried out the renovation of the SS anemia and mixed medicine center, located in the commune of Kalamu, in Kinshasa. Work is progressing normally and should be completed by the end of October 2023.
While waiting for the work to be completed, patients are temporarily cared for at the Yolo Medical centre. The Foundation of the Spouse of the Head of State is also a partner of this center and ensures a regular supply of pharmaceutical products and materials necessary for the care of patients.
It is important to remember that sickle cell disease is a genetic disease characterized by an alteration of hemoglobin, a protein contained in red blood cells. This alteration makes the red blood cells more fragile and prevents them from transporting oxygen correctly. People with sickle cell disease can suffer from severe and frequent pain, serious infections, strokes and a shortened life expectancy.
The fight against sickle cell disease is therefore a major public health issue in regions where the disease is rife. Raising awareness, early detection and patient care are essential actions to improve the quality of life of people with sickle cell disease and reduce their mortality rate.
On this World Sickle Cell Day, let’s also remember the importance of scientific research in understanding this complex disease and in developing new treatments.